From Despair to Hope, a New World of Treatments
By David Welch, President and Senior Producer, M2 MultiMedia Communications Tonight, Wednesday March 28 at 9:00 EST, a documentary called From Despair to Hope, A New World of Treatments, will be...
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Bringing Hope to Patients
No-one expected Hope Bartley to survive after she was born three months early. Thanks to extraordinary biotech medicine, she did. Alena Galan, age 14, is one of only a few thousand patients with a rare...
View ArticleNational Patient Advocate Foundation: Cancer Patients are Being Left Behind
Roll Call published a commentary today by Nancy Davenport-Ennis of the National Patient Advocate Foundation on the effects of the sequester on cancer care. The op ed states that these ‘cuts are shown...
View ArticleMedicare Part B: Barriers to Cancer Treatment
The National Patient Advocate Foundation (PAF) has seen a notable rise in calls for assistance from both Medicare beneficiaries and cancer doctors regarding difficulty accessing certain cancer drugs in...
View Article21st Century Cures: Accelerating the Discovery-Development-Delivery Cycle
How can we give patients faster access to innovative treatments and cures? That’s the question the House Energy and Commerce Committee is asking our nation’s foremost medical experts and innovators...
View ArticleMaking the Case for Personalized Medicine
Personalized medicine is the customization of healthcare. Already, a suite of molecular approaches is being used to tailor certain medical decisions, practice and products to the individual patient....
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Mito What???
Mitochondrial Disease: The Most Common Disease You’ve Probably Never Heard of… About 20 years ago, mitochondrial disease was virtually unheard of. Just 10 years ago, it was considered rare. Today,...
View ArticlePatient and Venture Philanthropy Groups Presenting at 2014 BIO Investor Forum
BIO’s alliance development team works to foster collaboration between the biotech industry and nonprofit disease foundations. In recent years, many nonprofit foundations have become more engaged in the...
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BIO Patient & Health Advocacy Summit: The Power of Partnerships
This week, the BIO Patient & Health Advocacy Summit powered partnerships in the industry to advance drug discovery by bringing together patient advocacy organizations, government agencies and...
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Attacks on Venture Philanthropy Miss Mark Badly
In a highly problematic op-ed in today’s New York Times, freelance journalist Llewellyn Hinkes-Jones attacked venture philanthropy and patient foundation funding of medical research, which has become a...
View ArticleWorld Rare Disease Day Celebrates Patient Advocacy and Activism Around The Globe
Global Genes™ and the identifiable Blue Denim Genes Ribbon™ provides opportunity to show support and help build awareness Global Genes, a leading patient advocacy organization with the mission to...
View ArticleUnited Health To Congress: Let Cancer Patients Eat Gauze (Op-Ed in The Hill)
Jonathan Wilcox’s op-ed in The Hill today highlights the growing challenge of insurance company tactics that contribute to increased costs to the health care system and restricted patient access to...
View ArticleBIO 2015 Kicks Off: Patient-Focused Drug Development Key Theme of Day One
The BIO International Convention kicked off in Philadelphia today with a strong emphasis on patient-focused drug development as a seismic shift in the way drugs are developed and delivered. The...
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Wall Street Journal: Patients Deserve Better
In case you missed it, The Wall Street Journal published my Letter to the Editor this morning. I make the point that the problem isn’t innovative new treatments from America’s biopharma industry but...
View ArticleOrphan Drug Tax Credit is Crucial to Rare Disease R&D
The term “rare disease” may be misleading: to be “rare” a disease must effect fewer than 200,000 people in the U.S., but there are over 7,000 rare diseases that have been identified. Taken together,...
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BIO Principles Put Patients First
Patient advocacy organizations play an indispensable role in the biopharmaceutical development process: They help scientists and researchers better understand what it’s like to live with the diseases...
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Welcome to the 2017 BIO Patient and Health Advocacy Summit!
Patients are at the forefront of everything we do. Each year BIO brings the patient stakeholder community together at the BIO Patient and Health Advocacy Summit to network, to learn, to engage, to...
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Understanding the Patient Voice: Unique Perspectives on Healthcare
To end Day 2 of Education Tracks at the 2018 BIO International Convention, Julie Gerberding, Executive Vice President & Chief Patient Officer, Merck & Com Inc. led a discussion with three...
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Better Understanding the Patient Voice at BIO 2018
Day Three of Educational Tracks at #BIO2018 included a panel on ‘Best Practices for Working with Patient Advocacy Organizations.’ Led by Karlin Schroeder, MA, Director of Community Engagement with the...
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A Patient-Centric Approach to Investing & Partnering
Thursday’s Plenary Luncheon Fireside Chat at the 2018 BIO Investor Forum (BIF) featured two industry leaders: Rowan Chapman, PhD., head of Johnson & Johnson Innovation, California, and moderator...
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